This post from EDS Info’s blog will resonate with anyone who has lived with any type of chronic illness and/or pain. Please check out all the informative articles about chronic pain at EDS Info’s blog HERE. If you have never visited this blog, you are really missing out on some excellent articles and information, not just about EDS but all kinds of chronic illness/pain. Zyp gathers the best, most informative and most up-to-date medical articles out there and shares them with us!! Check it out. I guarantee you will learn a LOT.
The Shame of Chronic Illness
When I recently read the phrase, “I’m embarrassed to be sick”, it made my stomach clench and my breath catch. That’s exactly what I’ve been feeling: this vague sense of social unease even with close friends, a reluctance to be seen or even talk to people–especially those that knew me before I became chronically ill.
At the age of 55, after a lifetime of seemingly unrelated physical complaints and inexplicable pains that kept worsening, I was finally diagnosed in 2012 with Ehlers-Danlos Syndrome, a genetic flaw which leads to defective connective tissues. This results in chronic pain and many other health problems, as body parts aren’t held together properly, joints dislocate spontaneously, tissues stretch or tear, lose elasticity, and wear out early.
I am ashamed of being sick. I spent my previous life trying to prove how tough I was, declared my independence early, made…
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