Tag Archives: Sjogrens

My Latest Curse…. Sjogrens

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Shell of Me….

Sometimes I look at myself in the mirror and I don’t even recognize my reflection. After all these years, all these agonies, all the head trips, all the experiences….good and bad….I can’t believe that the young, resilient Julie has turned … Continue reading

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A Different Perspective (on Pain)

Originally posted on EDS and Chronic Pain News & Info:
A Different Perspective Once I was healthy, then I was sick. Once I was strong, now I am weak. Accumulated damage from a genetic flaw, weakens the frame, corrupts the…

Posted in Arthritis, Challenges, Changes, Chronic Illness, Chronic Pain, Dealing With Doctors, Diagnosis, Disbelief, Discouragement, Emotions, Empowerment, Endurance, Fibromyalgia, Flare Up, Focus, Health, Hope, Hyper-Sensitivity, Inner Strength, Life Journey, Medical Community, Osteoarthritis, Pain Scale, Stigma | Tagged , , , , , , , , , , , , , , , , , , , | Leave a comment

Aging & Dealing With Worsening Chronic Pain

It seems to me that my desire to write comes when my pain is at it’s worst.  When I am feeling better, I don’t want to sit and write, I want to get up and live my life.  So even … Continue reading

Posted in Aging, Anger, Anger Management, Arthritis, Bitterness, Challenges, Changes, Chronic Illness, Chronic Pain, Connections, courage, Depression, Diagnosis, Disbelief, Discouragement, Emotions, Empowerment, Endurance, Fear, Fibromyalgia, Flare Up, Focus, Hope, Hyper-Sensitivity, Inner Strength, Irritability, Isolation, Life Journey, Medication, Menopause, Narcotics, Online Relationships, Osteoarthritis, Pain Medication, Past Experiences, Relationships, Sadness, Self Hate, Self Image, Self Love, Sensory Overload, Sharing, Tendinitis | Tagged , , , , , , , , , , , , , , , , , , , , , , , | 8 Comments

How Can It Be?

How can this body contain such incredible agony and how can I keep from crying out loud when it hits me so hard… The stunning agony the intensity and the flames of fire consume me whole, body and soul. ********************************** … Continue reading

Posted in Arthritis, Central Nervous System, Challenges, Chronic Illness, Chronic Pain, Depression, Disbelief, Discouragement, Emotions, Endometriosis, Endurance, Escape, Fear, Fibromyalgia, Flare Up, Health, Hyper-Sensitivity, Inner Strength, Isolation, Life Journey, Life Path, Osteoarthritis, Past Experiences, Plantar Fasciitis, Sadness, Self Hate, Self Image, Self Love, Sensory Overload, Temperature Changes, Tendinitis, Weather Changes | Tagged , , , , , , , , , , , , , , , , , | 4 Comments

The Autoimmune Disease Parade That Is My Life….

I just saw a new-to-me rheumatology nurse practitioner on Friday.  During the appointment she took about an hour to ask questions, examine me and discuss my life with me. I told her in a nutshell about all the diseases I … Continue reading

Posted in Aging, Arthritis, Bitterness, Central Nervous System, Challenges, Changes, Chronic Illness, Chronic Pain, Dealing With Doctors, Depression, Diagnosis, Discouragement, Emotions, Endometriosis, Endurance, Fibromyalgia, Flare Up, Health, High Blood Pressure, Hyper-Sensitivity, Insomnia, Irritability, Isolation, Life Journey, Life Path, Medical Community, Medication, Menopause, Osteoarthritis, Pain Medication, Pain Scale, Past Experiences, Plantar Fasciitis, Poor Vision, Sadness, Seasons, Self Hate, Self Image, Self Love, Sensory Overload, Side Effects, Temperature Changes, Tendinitis, Weather Changes | Tagged , , , , , , , , , , , , , , , , | 10 Comments